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Schizencephaly Awareness







KFYR TV
Megan Hahn, Reporting
Libby Wolff will celebrate her first birthday May 22, but at a such a young age, she's faced more in her life than most people. She was diagnosed last July with Schizencephaly. A disorder that has no cure.

"It's just kind of taken us to a different emotional level definitely," said Kari Wolff Libby's mom. "We are thankful for things that we never would have been before. Right?"

Just two months after Libby's adoption, she received her diagnosis when an MRI discovered a missing portion in the right frontal lobe of her brain.

"The best advice I've been given is to take everything day to day and enjoy her for the baby she is. And, I mean, I hope for everything. I hope she can walk and talk and do everything that they said she can't. That's our goal, to give her everything that we possibly can and give her treatment that there is," said Kari.

The defect results in abnormal development of clefts in the brain.

For now, the Wolff family is focusing on helping Libby through physical and speech therapy.

"She's going to need therapy throughout because there is no cure except for therapy," said Dr. Kristie Toman, Mid Dakota Clinic.

"Hopefully, she keeps up the good work. She's a little fighter," said Mike Wolff, Libby's dad.

In fact, Libby's parents say she's gained more muscle control since starting therapy.

May 19 is Schizencephaly Awareness Day. To find out more visit www.wearerare.org.